I had blood drawn for another beta yesterday morning and received the call from the nurse at around 8 pm last night, which was worrisome in itself because it's way outside their normal business hours. My number increased from 494 to 1955 in six days. The beta is high enough at this point that if there were anything viable in the uterus, they would have seen it. She asked me to come in again this morning, and was again very adamant that if I have any pain, especially on one side or the other, I was to go to the emergency room immediately.
I had some severe cramping (exactly like period cramps and not on one side or the other) for a couple of hours around dinner time last night, and started bleeding bright red. The cramps and bleeding tappered off around 7 pm (just before she called) and I got a decent sleep, thankfully. I arrived at the clinic this morning shortly after 9 am and they sent me right to the clinic for another beta and a bunch of labs for liver function. The purpose of the liver function tests was that if my beta had continued to increase, I'd have to go in for a methotexrate shot to stop the development of whatever it is, wherever it is, and the shot can harm poorly functioning livers.
Unfortunately, my beta this morning increased to 2100, so we have an appointment this evening at 6:30 at the hospital to get the shot.
Just to clear up some confusion about why I am getting the shot even though it seems like something is developing still, I'll try to explain a few things. In a normal pregnancy, the beta will go up about 66% every 48 to 72 hours for the first few weeks. 85% of women follow this guideline, but 15% do not. I was close for a few of my beta's, which is why I held on to the hope that I was part of that 15%. My initial beta of 24 at about 13 days past ovulation was low, but you have to start somewhere, and I was hoping it just implanted late. I also didn't know the exact date of ovulation, so I could have been even earlier, and there the justification for my low numbers began.
So, my numbers would almost double, not double, almost double, not double, etc., but keep going up. However, they weren't going up fast enough. My beta yesterday of 1955 was taken on a day where I was at very earliest (according to my justifications) six weeks two days pregnant, and at latest, six weeks six days pregnant. The normal beta range for six weeks zero days is between 1080 and 56,500 mIU. I was in range, but barely.
After my beta this morning of 2100, things were essentially confirmed. A rise of only 150-ish in 24 hours is a failed pregnancy.
I have no question that this isn't viable at this point. If I stop trying to justify everything and make my numbers work, I'd be seven weeks today, and nothing is supporting that - beta numbers or ultrasound.
The good news is that this chapter is finally coming to a close and the next chapter is beginning. We are still on the list for the September IVF / Donor Egg seminars which means we're still on schedule for a December / January IVF. This threw a wrench in to the machine, but luckily it wasn't a big wrench.
Wednesday, July 20, 2011
Tuesday, July 19, 2011
Still on the roller coaster
Just a quick update from the last post - unfortunately, my hopes were once again recharged following my sixth beta. Three days after my poor beta of 229, I had a repeat and was shocked to hear that it had increased to 494! Hope springs eternal and all that!
I received the results last Friday and we were cautiously optomistic all weekend. I purchased a CBE with Conception Indicator pregnancy test the afternoon I received these awesome results and it showed that I was 2 - 3 weeks pregnant, which was low for where I was in the pregnancy according to my last period, but I justified the numbers away and hoped for the best.
On Monday (yesterday), I took yet another CBE with Conception Indicator and it had jumped to 3+ weeks pregnant! My beta was going up! According to some random information I found online, for the test to read 3+ weeks, my beta would have to be over 1000 or so. Exciting! I was hopeful that we might actually see a little bean on my ultrasound this morning.
But, it was not to be. While we did get the good news that they didn't see anything in my tubes, and therefore my risk for ectopic was 'very low', we also didn't see anything in my uterus. Based upon my chart, which shows when we had sex and when I got my first positive pregnancy test, the earliest I could be is about 6 weeks, 2 days, and the clinic has me down as 6 weeks, 6 days. Either way, there should have been something. All they saw was a nice thick endometrium and that's it.
The doctor sent me for another beta and I should have the results by the end of today, but of course, when I finally got to work around noon, I started cramping and finally started spotting red. I think it's finally over and the numbers from this morning will prove it.
Being on this emotional roller coaster has caused so much stress for me, Derek and our families (especially my sister Lara, who is waiting for me to donate eggs to her - this puts her life on hold as well) that I'll be thankful to conclude this chapter in our lives.
I received the results last Friday and we were cautiously optomistic all weekend. I purchased a CBE with Conception Indicator pregnancy test the afternoon I received these awesome results and it showed that I was 2 - 3 weeks pregnant, which was low for where I was in the pregnancy according to my last period, but I justified the numbers away and hoped for the best.
On Monday (yesterday), I took yet another CBE with Conception Indicator and it had jumped to 3+ weeks pregnant! My beta was going up! According to some random information I found online, for the test to read 3+ weeks, my beta would have to be over 1000 or so. Exciting! I was hopeful that we might actually see a little bean on my ultrasound this morning.
But, it was not to be. While we did get the good news that they didn't see anything in my tubes, and therefore my risk for ectopic was 'very low', we also didn't see anything in my uterus. Based upon my chart, which shows when we had sex and when I got my first positive pregnancy test, the earliest I could be is about 6 weeks, 2 days, and the clinic has me down as 6 weeks, 6 days. Either way, there should have been something. All they saw was a nice thick endometrium and that's it.
The doctor sent me for another beta and I should have the results by the end of today, but of course, when I finally got to work around noon, I started cramping and finally started spotting red. I think it's finally over and the numbers from this morning will prove it.
Being on this emotional roller coaster has caused so much stress for me, Derek and our families (especially my sister Lara, who is waiting for me to donate eggs to her - this puts her life on hold as well) that I'll be thankful to conclude this chapter in our lives.
Tuesday, July 12, 2011
It's officially loss number three
The clinic called late yesterday afternoon and told me my number had only gone up to 229 from 180, a rise of only 21%. About three hours before they called, I started spotting, so I already knew it was over.
Thank you everyone for all your support and positive thoughts, but it looks like this one is coming to an end too. At this point, I am hoping for a quick natural miscarriage.
Going forward, we'll be making an appointment to see both our IVF doctor and the Repeat Pregnancy Loss doctor at the fertility clinic to discuss what the plan is going forward. On the positive side of this all, we will be doing more investigation to determine if there is something genetic going on with us, or if there is something going on in my uterus that is preventing good implantation. I'm glad we'll be doing this before the IVF rather then going through more heartbreak and big costs, though we have to be realistic, as there is only a 50% chance that we will find an answer.
For now, we're both dealing with this pretty well. It's obviously different for Derek because he isn't the one that's pregnant and it wasn't to the point of being real for him yet, but I'm sure he's sad about this too. Staying positive about the future is what keeps us going, and knowing that we have a good plan is reassuring.
Thank you everyone for all your support and positive thoughts, but it looks like this one is coming to an end too. At this point, I am hoping for a quick natural miscarriage.
Going forward, we'll be making an appointment to see both our IVF doctor and the Repeat Pregnancy Loss doctor at the fertility clinic to discuss what the plan is going forward. On the positive side of this all, we will be doing more investigation to determine if there is something genetic going on with us, or if there is something going on in my uterus that is preventing good implantation. I'm glad we'll be doing this before the IVF rather then going through more heartbreak and big costs, though we have to be realistic, as there is only a 50% chance that we will find an answer.
For now, we're both dealing with this pretty well. It's obviously different for Derek because he isn't the one that's pregnant and it wasn't to the point of being real for him yet, but I'm sure he's sad about this too. Staying positive about the future is what keeps us going, and knowing that we have a good plan is reassuring.
Sunday, July 10, 2011
This must be a close approximation to hell
I'm sure if we all were in charge of creating our own personal hell when we die (if there is such a thing, or even an option), beta hell would be mine. Unfortunately, I'm living it out as we speak and it sucks!
My beta from Friday was 180, up from 100 on Wednesday, with a doubling time of 55.5 hours, which is pretty good. The call came at 8:15 this morning, after being up late at the movies (Horrible Bosses gets a 7 out of 10 from me), and finally falling asleep at 2 am. I LEAPED out of bed when my annoyingly loud ringer went off because I knew who it would be, and spoke with the nurse from the clinic. She was very neutral about it all and didn't give an opinion one way or another. The only thing is that when she said something about spotting and cramping, and I said I had had none, she sounded surprised. Not sure if that's good or bad.
I have no idea what this means. Vanishing twin syndrome? Ectopic? Slow starter or late implanter? Either way, the odds are still against us, but at least there are still odds.
I'm in for my fifth draw this afternoon and will hopefully have the results tomorrow. If it doubles again, I won't do another for at least a week. I need a break, and so do my veins.
I told Derek this morning over breakfast that we will go on believing this pregnancy is viable and try not to have any negative thoughts about it. He is to go back to calling it his little monkey and kissing my stomach goodnight, because no matter what the outcome is we love this little bean so much already and that's all we want it to feel.
My beta from Friday was 180, up from 100 on Wednesday, with a doubling time of 55.5 hours, which is pretty good. The call came at 8:15 this morning, after being up late at the movies (Horrible Bosses gets a 7 out of 10 from me), and finally falling asleep at 2 am. I LEAPED out of bed when my annoyingly loud ringer went off because I knew who it would be, and spoke with the nurse from the clinic. She was very neutral about it all and didn't give an opinion one way or another. The only thing is that when she said something about spotting and cramping, and I said I had had none, she sounded surprised. Not sure if that's good or bad.
I have no idea what this means. Vanishing twin syndrome? Ectopic? Slow starter or late implanter? Either way, the odds are still against us, but at least there are still odds.
I'm in for my fifth draw this afternoon and will hopefully have the results tomorrow. If it doubles again, I won't do another for at least a week. I need a break, and so do my veins.
I told Derek this morning over breakfast that we will go on believing this pregnancy is viable and try not to have any negative thoughts about it. He is to go back to calling it his little monkey and kissing my stomach goodnight, because no matter what the outcome is we love this little bean so much already and that's all we want it to feel.
Saturday, July 9, 2011
Good news, bad news, and everything in between
This is a long awaited post that couldn't be made until I talked to certain family members first. So, sorry you've been out of the loop, but I'm finally updating!
First of all, my good news: I got accepted to University! I start the Masters of Arts in Environment and Management program at Royal Roads on September 5. It is a program for full time professionals that requires a lot of home study, three, three week residencies in Victoria, B.C., and a thesis. Apparently I blew them away with my Letter of Intent and they accepted me as a mature learner as I don't have an undergrad degree. We are SO excited! My first residency is the first three weeks of October.
Here is my in between news: the same day I got my acceptance letter, I found out I was pregnant. It was a total shock, of course, but we were thrilled! I hadn't been taking my temperature or using OPKs, so I had no idea when I ovulated. I had my sonohysterogram this cycle too, so I thought that may have delayed ovulation a bit, but maybe by two days, tops.
I called my GP and she asked me to go in for a beta, and after an agonizing three and a half day wait, we got the results - 24. I was definitely pregnant, but very early. It seemed low for how far along I thought I was, but again, I had no idea when I ovulated, and it was in range either way.
I called the fertility clinic immediately and they sent me in for a repeat, as well as putting me on progesterone and baby aspirin (for clotting). Three and a half days after my first beta, my numbers and gone up to 83. We started to get more excited, as the numbers were doubling properly, albeit still low.
Two days later I went in for another repeat. They called me first thing the next morning with crushing news. My beta only rose to 100 in two days, no where near normal. This was this past Wednesday, July 6th. I went in for a repeat yesterday, the 8th, and am still waiting for the results.
At this point, it's bad news. My numbers don't look good and this will likely result in my third miscarriage. I have no cramping or bleeding yet, but the progesterone could be delaying things. I'll know more when I get my fourth set of numbers.
It's always devastating to have a miscarriage, but it feels like the more it happens, the more numb you become. I have hardly cried this time, and I'm not sure why not. Maybe I expected it?
Let's finish this post with another piece of semi-good news, eh? Because this is my third loss, I am now considered a reoccurring pregnancy loss patient. I will now undergo a bunch of genetic and other testing before the IVF, as will Derek. If there is something wrong with either of us that makes our embryos non-viable, I'd rather know it now then after we spend thousands on a failed IVF.
I guess there is still a very small chance that this pregnancy will work out, so let's hold out for that for now. The proof is in the numbers. I'll update when I get the call.
First of all, my good news: I got accepted to University! I start the Masters of Arts in Environment and Management program at Royal Roads on September 5. It is a program for full time professionals that requires a lot of home study, three, three week residencies in Victoria, B.C., and a thesis. Apparently I blew them away with my Letter of Intent and they accepted me as a mature learner as I don't have an undergrad degree. We are SO excited! My first residency is the first three weeks of October.
Here is my in between news: the same day I got my acceptance letter, I found out I was pregnant. It was a total shock, of course, but we were thrilled! I hadn't been taking my temperature or using OPKs, so I had no idea when I ovulated. I had my sonohysterogram this cycle too, so I thought that may have delayed ovulation a bit, but maybe by two days, tops.
I called my GP and she asked me to go in for a beta, and after an agonizing three and a half day wait, we got the results - 24. I was definitely pregnant, but very early. It seemed low for how far along I thought I was, but again, I had no idea when I ovulated, and it was in range either way.
I called the fertility clinic immediately and they sent me in for a repeat, as well as putting me on progesterone and baby aspirin (for clotting). Three and a half days after my first beta, my numbers and gone up to 83. We started to get more excited, as the numbers were doubling properly, albeit still low.
Two days later I went in for another repeat. They called me first thing the next morning with crushing news. My beta only rose to 100 in two days, no where near normal. This was this past Wednesday, July 6th. I went in for a repeat yesterday, the 8th, and am still waiting for the results.
At this point, it's bad news. My numbers don't look good and this will likely result in my third miscarriage. I have no cramping or bleeding yet, but the progesterone could be delaying things. I'll know more when I get my fourth set of numbers.
It's always devastating to have a miscarriage, but it feels like the more it happens, the more numb you become. I have hardly cried this time, and I'm not sure why not. Maybe I expected it?
Let's finish this post with another piece of semi-good news, eh? Because this is my third loss, I am now considered a reoccurring pregnancy loss patient. I will now undergo a bunch of genetic and other testing before the IVF, as will Derek. If there is something wrong with either of us that makes our embryos non-viable, I'd rather know it now then after we spend thousands on a failed IVF.
I guess there is still a very small chance that this pregnancy will work out, so let's hold out for that for now. The proof is in the numbers. I'll update when I get the call.
Sunday, June 19, 2011
Happy Father's Day
Although my husband never reads my blog, I want to wish him a happy Father's Day. We unfortunately do not have our own bundle of joy, but I know that when the time comes - and it will - he will be the most wonderful father to that lucky, lucky child.
Even though he doesn't say it, he's very emotionally invested in being a dad. Last night I was talking about a baby name I loved, and he then spent about 45 minutes going through baby name websites looking up names he liked. It was very touching, and reminded me that he's in this just as much as I am. It'll take the two of us to get through this.
Love you like a turtle loves a dove, Derek.
Even though he doesn't say it, he's very emotionally invested in being a dad. Last night I was talking about a baby name I loved, and he then spent about 45 minutes going through baby name websites looking up names he liked. It was very touching, and reminded me that he's in this just as much as I am. It'll take the two of us to get through this.
Love you like a turtle loves a dove, Derek.
Wednesday, June 8, 2011
The Sonohysterogram
I am the type of person that likes to know all of the details before I make a decision or do something important. When it comes to work, I am the person that reads the entire manual, including the introduction and glossary. When I go to the dentist for a filling, I ask to see the x-rays, get a description of why he thinks I need the work done, and ask how it's going to be done. When I'm getting some sort of procedure done, like a Sonohysterogram, I Google it.
Search one: Sonohysterogram
Search two: Sonohysterogram procedure
Search three: Sonohysterogram pain
Search four: Sonohysterogram horrifying pain
Search five: Sonohysterogram death
Yeah, that's me.
So after scaring the crap out of myself, I followed the instructions for taking the preventative antibiotics, took the Naproxen two hours before the scheduled procedure, and also took some leftover Valium I had (from the dentist).
We arrived at the clinic early and waited for my turn to go in. Luckily for me (or was it unluckily?), they were on time and I was quickly escorted into the back on my own. Husbands, or anyone for that matter, aren't allowed to come in the room. I was led to a curtained off area and instructed to strip from the waist down and put on a paper robe. Once the room was set up, they led me in and asked me to get up on the table.
The nurses and doctors were great. They explained everything that was going to happen (they all do this at the fertility clinic - its awesome for someone like me that needs to know everything). The nurse started off with the dildo cam (yeah, that's not the right term for it, but it's more fun to say) and checked my lining, ovaries and follicles. Once that was done, two doctors came in to perform the Sonohysterogram.
The procedure starts with the insertion of a speculum and then they start to insert a catheter in through the cervix. This is where it always sucks for me. My cervix always seems to be in an odd position and has a curve in it. They always say 'this might pinch'. Hahaha, yeah... Once they slaughter my cervix and get the catheter through, they need to inflate this balloon on the catheter to ensure there is enough room for the saline to get through. This fucking hurt. A lot. And then, while I was already moaning in pain, they start to inject the saline. This really fucking hurt.
Guess what they did next, while I'm laying on the table trying to control my breathing? They put the dildo cam back in and started taking pictures, discussing what they saw on the screen that I couldn't see. All I heard was stuff like 'polyps', 'fibroid', 'what is that?' and similar scary things. The nurse did a great job of telling me I was doing a great job, and finally, after about five minutes, it was all over.
So, here's the thing - I have a two cm 'lesion' in my uterus, right next to some scar tissue that has caused a 'false passage', which is important to know for embryo placement (they won't stick to the scar tissue, so they need to avoid it during IVF). The lesion needs to be looked at and probably removed via hysteroscopy and D&C, so next week they'll schedule me in for surgery. This is similar to the surgery I had in April 2010 and I'll be going under (thank goodness).
Anyway, I think I'm one of the minority that has a painful experience with this procedure. Normally, it's a pretty basic procedure and is really not that bad. Maybe I'm just extra wussy, or maybe I'm just extra lucky and my body is constructed in a way that makes everything hurt worse then normal. Who knows?
I guess it's another bump in the road, but if I get in for the surgery relatively quickly, this shouldn't delay anything. It just sucks.
Damn, I hate infertility.
Search one: Sonohysterogram
Search two: Sonohysterogram procedure
Search three: Sonohysterogram pain
Search four: Sonohysterogram horrifying pain
Search five: Sonohysterogram death
Yeah, that's me.
So after scaring the crap out of myself, I followed the instructions for taking the preventative antibiotics, took the Naproxen two hours before the scheduled procedure, and also took some leftover Valium I had (from the dentist).
We arrived at the clinic early and waited for my turn to go in. Luckily for me (or was it unluckily?), they were on time and I was quickly escorted into the back on my own. Husbands, or anyone for that matter, aren't allowed to come in the room. I was led to a curtained off area and instructed to strip from the waist down and put on a paper robe. Once the room was set up, they led me in and asked me to get up on the table.
The nurses and doctors were great. They explained everything that was going to happen (they all do this at the fertility clinic - its awesome for someone like me that needs to know everything). The nurse started off with the dildo cam (yeah, that's not the right term for it, but it's more fun to say) and checked my lining, ovaries and follicles. Once that was done, two doctors came in to perform the Sonohysterogram.
The procedure starts with the insertion of a speculum and then they start to insert a catheter in through the cervix. This is where it always sucks for me. My cervix always seems to be in an odd position and has a curve in it. They always say 'this might pinch'. Hahaha, yeah... Once they slaughter my cervix and get the catheter through, they need to inflate this balloon on the catheter to ensure there is enough room for the saline to get through. This fucking hurt. A lot. And then, while I was already moaning in pain, they start to inject the saline. This really fucking hurt.
Guess what they did next, while I'm laying on the table trying to control my breathing? They put the dildo cam back in and started taking pictures, discussing what they saw on the screen that I couldn't see. All I heard was stuff like 'polyps', 'fibroid', 'what is that?' and similar scary things. The nurse did a great job of telling me I was doing a great job, and finally, after about five minutes, it was all over.
So, here's the thing - I have a two cm 'lesion' in my uterus, right next to some scar tissue that has caused a 'false passage', which is important to know for embryo placement (they won't stick to the scar tissue, so they need to avoid it during IVF). The lesion needs to be looked at and probably removed via hysteroscopy and D&C, so next week they'll schedule me in for surgery. This is similar to the surgery I had in April 2010 and I'll be going under (thank goodness).
Anyway, I think I'm one of the minority that has a painful experience with this procedure. Normally, it's a pretty basic procedure and is really not that bad. Maybe I'm just extra wussy, or maybe I'm just extra lucky and my body is constructed in a way that makes everything hurt worse then normal. Who knows?
I guess it's another bump in the road, but if I get in for the surgery relatively quickly, this shouldn't delay anything. It just sucks.
Damn, I hate infertility.
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